GearUp4CF - Why I Ride Transistor (https://transistor.fm) https://feeds.transistor.fm/gearup4cf-why-i-ride This uplifting podcast will bring you into the life and families of those with Cystic Fibrosis. This includes a collection of interviews featuring Riders, Volunteers and Families involved with the annual ride for GearUp4CF, and the Cystic Fibrosis community. Their personal stories share how this genetic disease affects families, the struggles of daily living, and the journey to finding a cure. © 2025 Cystic Fibrosis BC 4db1c512-6ecb-5d28-adb1-993730535628 no en Fri, 09 Feb 2024 12:10:40 -0800 Tue, 02 Dec 2025 14:48:17 -0800 https://www.gearup4cf.com/#contact-us https://img.transistor.fm/tQcN2CKkS0gtdZeB05Q9zVbkEsuCrATc-3ZDxQ-WBXo/rs:fill:0:0:1/w:1400/h:1400/q:60/mb:500000/aHR0cHM6Ly9pbWct/dXBsb2FkLXByb2R1/Y3Rpb24udHJhbnNp/c3Rvci5mbS9zaG93/LzIyMDczLzE2MjM4/ODk2MjItYXJ0d29y/ay5qcGc.jpg GearUp4CF - Why I Ride https://www.gearup4cf.com/#contact-us episodic Cystic Fibrosis BC This uplifting podcast will bring you into the life and families of those with Cystic Fibrosis. This includes a collection of interviews featuring Riders, Volunteers and Families involved with the annual ride for GearUp4CF, and the Cystic Fibrosis community. Their personal stories share how this genetic disease affects families, the struggles of daily living, and the journey to finding a cure. This uplifting podcast will bring you into the life and families of those with Cystic Fibrosis. non-profit, gearup4CF, CysticFibrosis, CFCantWait, GoFurtherForCF Cystic Fibrosis BC No No Mike Hamilton 4 4 Mike Hamilton full 7843670e-3e5a-49f4-a7cf-98f3dde34e41 https://share.transistor.fm/s/0bec17cf Mike Hamilton was diagnosed with CF in his pre-teens years. He remained healthy by being an active cyclist and playing soccer.

Currently studying as an undergrad student, he explains how important research for CF is to find the proper drugs and cure for this genetic disease. To read more about his work in detail, this article highlights their research, specifically with the drug Ivacaftor (primarily the G551D mutation) and it's affects on CF Patients.

Mike is currently one of the very few persons with Cystic Fibrosis selected to be on the clinical trial of the drug Trikafta. Here are the results of his clinical trail. He found relief from symptoms almost immediately. 

When this episode was recorded in early June of 2021, the drug Trikafta was not yet available to Canadians. June 18th, Canada approved the drug Trikafta could be prescribed by Doctors to Patients with CF. The next step is getting it covered in your health regions, as not all health insurance or MSP covers the costs.

Mike is one of our riders who continues to come back, be a part of the CF community and a champion for helping us find a cure with research and advocacy.

Links


]]> Mike Hamilton was diagnosed with CF in his pre-teens years. He remained healthy by being an active cyclist and playing soccer.

Currently studying as an undergrad student, he explains how important research for CF is to find the proper drugs and cure for this genetic disease. To read more about his work in detail, this article highlights their research, specifically with the drug Ivacaftor (primarily the G551D mutation) and it's affects on CF Patients.

Mike is currently one of the very few persons with Cystic Fibrosis selected to be on the clinical trial of the drug Trikafta. Here are the results of his clinical trail. He found relief from symptoms almost immediately. 

When this episode was recorded in early June of 2021, the drug Trikafta was not yet available to Canadians. June 18th, Canada approved the drug Trikafta could be prescribed by Doctors to Patients with CF. The next step is getting it covered in your health regions, as not all health insurance or MSP covers the costs.

Mike is one of our riders who continues to come back, be a part of the CF community and a champion for helping us find a cure with research and advocacy.

Links


]]> Sun, 27 Jun 2021 13:08:22 -0700 Cystic Fibrosis BC Cystic Fibrosis BC 1666 Mike Hamilton, a CF patient and a long time Gearup4CF rider, shares his experience including completing the 9-day Ride! Mike Hamilton, a CF patient and a long time Gearup4CF rider, shares his experience including completing the 9-day Ride! non-profit, gearup4CF, CysticFibrosis, CFCantWait, GoFurtherForCF No Todd Homenuk 3 3 Todd Homenuk full 82bee817-4178-4ccf-a3c1-ac76d3125d44 https://share.transistor.fm/s/03f49ab7 Todd was diagnosed with Cystic Fibrosis at a young age. He lived a relatively normal life through his teens and into University. Recently, being hospitalized, he was given Trikafta and saw a massive improvement. Listen to his story. Bonus, during the taping of this podcast, the Cystic Fibrosis drug Trikafta is now approved in Canada for Doctors to prescribe. This is a HUGE victory, but there is still more work to be done. The drug is available, but depending on your insurance provider, there is a cost.

WHAT CAN YOU DO TO ADVOCATE FOR ACCESS TO TRIKAFTA?

Stand up and make your voice heard. We need a commitment from provincial governments to expedite price negotiations and then immediate list of Trikafta after drug reviews are completed. Ways that you can help:

  • Sign the petition to tell your province to end the wait for life-saving CF drugs.
  • Send a letter to your provincial elected official
  • Join our National Advocacy Network.
  • Share your access stories on social media using #cfcantwait, and tag your elected officials.
  • Write to and meet with your provincial and federal elected officials. CF Canada’s advocacy toolkit will help you have these conversations.
  • Sign up for ‘The Advocacy Brief’ e-newsletter to get advocacy updates, including news about access to Trikafta, delivered straight to your inbox. 
]]> Todd was diagnosed with Cystic Fibrosis at a young age. He lived a relatively normal life through his teens and into University. Recently, being hospitalized, he was given Trikafta and saw a massive improvement. Listen to his story. Bonus, during the taping of this podcast, the Cystic Fibrosis drug Trikafta is now approved in Canada for Doctors to prescribe. This is a HUGE victory, but there is still more work to be done. The drug is available, but depending on your insurance provider, there is a cost.

WHAT CAN YOU DO TO ADVOCATE FOR ACCESS TO TRIKAFTA?

Stand up and make your voice heard. We need a commitment from provincial governments to expedite price negotiations and then immediate list of Trikafta after drug reviews are completed. Ways that you can help:

  • Sign the petition to tell your province to end the wait for life-saving CF drugs.
  • Send a letter to your provincial elected official
  • Join our National Advocacy Network.
  • Share your access stories on social media using #cfcantwait, and tag your elected officials.
  • Write to and meet with your provincial and federal elected officials. CF Canada’s advocacy toolkit will help you have these conversations.
  • Sign up for ‘The Advocacy Brief’ e-newsletter to get advocacy updates, including news about access to Trikafta, delivered straight to your inbox. 
]]> Tue, 22 Jun 2021 23:40:11 -0700 Cystic Fibrosis BC Cystic Fibrosis BC 861 Todd, a CF patient, tells his story. Todd, a CF patient, tells his story. non-profit, gearup4CF, CysticFibrosis, CFCantWait, GoFurtherForCF No Aaron Mittler 2 2 Aaron Mittler full 24e2c205-1a55-429d-9b39-2ec1c130a931 https://share.transistor.fm/s/c20258e1 Aaron Mittler, father of Lucy Mittler and CF patient, has been an active participant with Gearup4CF since it's early stages. He found that by becoming an advocate, and riding in Gearup4CF to raise money, was so important for funding research in helping to find a cure. His team, Lycra for Lucy, is a force! They've raised over $300 000 since starting the ride. He encourages you to get involved, to be a part of something bigger then yourself. #CysticFibrosisNeedsACure. 

]]> Aaron Mittler, father of Lucy Mittler and CF patient, has been an active participant with Gearup4CF since it's early stages. He found that by becoming an advocate, and riding in Gearup4CF to raise money, was so important for funding research in helping to find a cure. His team, Lycra for Lucy, is a force! They've raised over $300 000 since starting the ride. He encourages you to get involved, to be a part of something bigger then yourself. #CysticFibrosisNeedsACure. 

]]> Thu, 17 Jun 2021 19:22:20 -0700 Cystic Fibrosis BC Cystic Fibrosis BC 252 Aaron Mittler and his personal story with Cystic Fibrosis. Aaron Mittler and his personal story with Cystic Fibrosis. non-profit, gearup4CF, CysticFibrosis, CFCantWait, GoFurtherForCF No Brenda & Kenny Mackenzie 1 1 Brenda & Kenny Mackenzie full 1c16b256-c235-4b49-932b-3fd99679386f https://share.transistor.fm/s/22e0b38d Brenda, a mom of three boys discovered two of her three boys were positive with Cystic Fibrosis. Listen to Brenda's story along side her son Kenny on why they ride with Gearup4up, why they are a large part of the community and advocates for CF, and why it's important to show your support all year around. 

]]> Brenda, a mom of three boys discovered two of her three boys were positive with Cystic Fibrosis. Listen to Brenda's story along side her son Kenny on why they ride with Gearup4up, why they are a large part of the community and advocates for CF, and why it's important to show your support all year around. 

]]> Thu, 17 Jun 2021 12:54:01 -0700 Cystic Fibrosis BC Cystic Fibrosis BC 730 Brenda & Kenny Mackenzie share their story of a family affected by Cystic Fibrosis. Brenda & Kenny Mackenzie share their story of a family affected by Cystic Fibrosis. non-profit, gearup4CF, CysticFibrosis, CFCantWait, GoFurtherForCF No